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Thanks for asking! I uses some guided meditation created by a Tibetan master. There are two that I normally use. One is 40 minutes long and the other is 60 minutes long. It’s in Chinese, though.
If you are interested, feel free to post to the private facebook patient group created and managed by some BCD patients and we can discuss further. :)) Have a good day.
Thanks Mira.
I also used to use my feet to feel what’s in front of me. Since I started cane training, I found the cane Seems to work better than my feet. Sadly, The training has been stopped by the pandemic. I am looking forward to continue it at some point.
I found meditation helps me to see clearer and less shiny flashes. I was not sure about It at first but the effect has been consistent for the past year. I sure hope it lasts. 🙂
I am currently taking a training with the white cane. It is much more useful than I thought. I f haven’t seen the smart cane yet but I will be interested to try it out.
The cane training is a little overwhelming at first but it gets easier. The biggest hurdle is for me to practice around home, weirdly. I feel very self conscious around my neighborhood as I know all my neighbors in my street and I don’t want to explain why I am using a cane. I still have some good useful vision but i have a hard time to go down stairs and curbs whether it’s in the dark or in the day light.I guess in my perception, the cane should be for the complete blind. I am taking the training knowing it’s good for me and safer for me but subconsciously, i don’t think i am ready to fully embrace the use of white cane yet.
However, i have taken my cane. To the city with public transportation a few times and it made me feel safer. Without the cane, i won’t be able to do so on my own. While I was away from my neighborhood, I was actually ok to accept the cane. Once, i even forgot that I was using the cane till people around me were yelling at a bike rider behind me to watch out for me.
I don’t understand the psychological reasons behind my behaviors but i hope I can fully accept the white cane one day.
Hey guys, this is goodday. Wish you all have a good day.:)
I am from the the US but came from China originally. I experienced BCD symptoms at my early 30’s and was diagnosed at 34. my vision is pretty much like the baby image illustration in the second slide nowadays. And I rely on Adaptive technology to access internet a lot as i have more difficulties to read text.
https://www.invinciblevision.org/bcd-and-misdiagnosis/bcd-basics/,
Good or back, I am adjusting to the new situation.
It was so hard to find anyone who has BCD for so many years so I am very please to meet other people who are affected by BCD here. Wish all of us find ways to adjust to the days with BCD. It could be all bad but also it could be pretty amazing. I think we choose our own path to happiness.https://www.invinciblevision.org/bcd-and-misdiagnosis/bcd-basics/https://www.invinciblevision.org/bcd-and-misdiagnosis/bcd-basics/https://www.invinciblevision.org/bcd-and-misdiagnosis/bcd-basics/https://www.invinciblevision.org/bcd-and-misdiagnosis/bcd-basics/https://www.invinciblevision.org/bcd-and-misdiagnosis/bcd-basics/https://www.invinciblevision.org/bcd-and-misdiagnosis/bcd-basics/https://www.invinciblevision.org/bcd-and-misdiagnosis/bcd-basics.https://www.invinciblevision.org/bcd-and-misdiagnosis/bcd-basics/https://www.invinciblevision.org/bcd-and-misdiagnosis/bcd-basics/https://www.invinciblevision.org/bcd-and-misdiagnosis/bcd-basics/https://www.invinciblevision.org/bcd-and-misdiagnosis/bcd-basics/https://www.invinciblevision.org/bcd-and-misdiagnosis/bcd-basics/
You reminded me. I forgot to mention that I am also sensitive to light. Even when I am inside, i will have to wear a pair of sunglasses. I have changed all the lighting in the house to be dimmer and warm. The fluorescent light is most hard for my eyes. Going shopping or meeting friends outside of the house have been hard, so I wear my sunglasses all the time. It’s really hard to try and see through sunglasses so then I bought other pairs light tinted yellow or orange. Those works better.
Thank you for sharing your experience. My symptoms started with night blindness when I was 34. Quickly I started to see distorted lines which means straight lines become distorted. When I look at my window blinds I see waves instead of straight lines. Then my Right eye became blurry in two years. Right now both of my eyes are blurry. Sometimes I even see some Pupil size shiny gray light flashed in both of my eyes. I talked to my doctors and they had no idea what it is. Four years after my diagnosis, my central vision gradually became blurry. I had problems to differentiate colors between blue and green. Often times, I also seeThousands of tiny small shiny spots in both of my eyes. The amount of them fluctuates. When I am rested better the flashing tiny lights will reduce
Do you guys have anything similar?
BTW, i am using dictation and voiceover to type as i don’t see small text anymore. Sorry for the typos if any. 🙂