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I wish that we together are able to support in finding a cure for BCD for the good of so many suffering from this disease, the countless undiagnosed and also those who are mis-diagnosed.
I have been in consultation with ophthalmologists and retinal specialists from the age of 10. My retina has been checked by at-least 5 doctors until the age of 29. Only after I lost vision in my right eye (due to Choroidal Neo Vascular Membrane – another idiopathic rare occurrence in a young person), was a doctor able to correctly diagnose BCD and the same was confirmed by genetic pheno-typing. Post that, I have consulted several doctors for second opinions. If my memory serves me right, only 1 out of 5 doctor was aware of BCD and had seen a patient before. There is a huge awareness deficit about BCD.