Family member of BCD patient

[Miukie]

Hi All!

Thank you for inviting me to this community. I’m so grateful to be here.  I am here to understand and learn more about BCD so that I can help my loved to cope with his current situation.

[Mira]

Hi, welcome and thanks for joining.
Please feel free to ask any questions – also those subjects not yet discussed.
//Mira

[Miukie]

It’s not easy to cope with your loved one which have diagnosed with BCD and in denial mode.  I feel so helpless most of the time and unsure what can I do to make him feel better.  Sometimes I wish that the person that gotten such disease would me not him.

[IC57]

Hi,

Thanks for inviting me here and developing the great website to spread awareness.

Since there is no cure yet, I feel engaging more in physical activities (running, yoga) and trying to stay mentally healthy are the two things helping my loved one to delay progressing the disease.

I hope to learn more about other patient’s experiences and thing they are doing to cope up with BCD.

 

[Mira]

It is devastating to see your loved ones suffer, without being able to help them.

When in denial, there is nothing you can do, the same goes for BCD. Unfortunately😔

My best advice is for you to mentally prepare, to ‘catch’ him when he comes out of denial. To stay mentally and physically fit is essential! I also think encourage him to to sports and enjoy his most precious interests, will help him a lot. Maybe exploring new interests that does not require the perfect vision.

Best wishes.
//Mira

[Bonsmom]

Hi, I’m new one here. I’m Lily, a daughter of BCD patient.

My English is not so good. So if I’ve said something improper, please let me know, thanks.

I can’t agree with #Miukie any more. Your situation is as same as my mom, so I tried to be the mediator.

Base on his psychology or the mood, it’s so hard for us to know whether he needs our help.

I start to pay attention on which he is interested in and make more conversation with him to make him feel  not so lonely.

Maybe this can give you a little help.

 

This is such a long way for both patients and their family members.

Fortunately, thanks to all who work so hard for BCD , we still have them and each other.

Just keep working, and relax yourself as well.

 

Lily

[Wasp]

I am a patient, not a family member. My family does not even know this yet but some friends do, as well as my partner. I may also appear in denial to some of them as I rarely want to talk about it. The reality is that I am not in denial but I consciously make an effort not to think about it. Thinking about my condition can be overwhelming and I find it best just to deal with its impact and adjust day by day. I am still me regardless of my condition – nothing else in me changed. One of the reasons I fear to tell anyone is because I do not want people to see me differently, treat me with pity or feel sad for me. So the support I want from my loved ones is none – what I want is for them to focus on the rest of who I am, not my condition. People are different and may deal with this differently than I do but if I was to advise my own family how to help me, I would tell them to ignore my condition and focus on the other, more positive things in our lives.

[Author]

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